Maddie Brown Brush reveals daughter is missing fingers and toes – News Live

Sister Wives’ star Maddie Brown Brush penned an emotional message on social media revealing that her infant child Evangalynn was born with a rare condition in a post on Wednesday Maddie, who is the daughter of TLC stars Kody and Janelle Brown, gave birth to the baby girl who was diagnosed with FATCO syndrome in August She and her husband Caleb decided to go public with the situation after realizing that this might help other parents ‘who may also be struggling ‘ ‘Our beautiful baby daughter Evie has been diagnosed with FATCO syndrome (basically the abbreviation for lots of intense Latin words),’ the mother of two wrote on Instagram ‘It’s a rare medical syndrome where bones in extremities do not fully develop,’ Share this article Share Along with the post, Maddie shared a sweet photo of her baby girl in a diaper and an adorable yellow bow around her head Her physical ‘abnormalities’ were visible in the precious snap and the reality star went on to explain how FATCO impacts Evie and what her pregnancy was like  ‘It wasn’t a complete surprise,’ continued Maddie, ‘we were aware of some abnormalities before birth ‘ ‘We knew something was wrong when we went in for a routine anatomy ultrasound at 26 weeks and what should have taken 45 minutes, ended up lasting a nerve-wracking two hours ‘Her OBGYN informed the expectant mother that the baby had oligodactyly, meaning she developed fewer than 10 fingers  ‘Although this was better than expected, it was still heartbreaking news,’ she said It wasn’t until the baby was born at the end of August, at 8 lbs. 12 oz. and measuring 21 inches long that she and her husband learned that the condition was more serious ‘[When] Evie was born, Caleb and I found out our precious little girl was missing more than just one finger She was missing three fingers, a toe and her fibula. ‘She also had a bowed tibia, a shortened forearm and some fusing in her fingers It was at this point, the doctors diagnosed her with FATCO syndrome.’FATCO is a rare, genetic, congenital limb malformation and the cause of the condition is unknown The syndrome is so rare that Maddie said she was only aware of less than 10 recorded cases similar to Evie   The Brushes were ‘hesitant’ at first to share their story out of a fear that their ‘infant daughter would become the target of mean jokes and cyberbullying ”That said, we felt not being open would be even worse and make Evie feel ashamed for something that makes her all the more special in our eyes,’ the proud mother explained ‘She is healthy in every other way aside from the missing bones. As a family, we have decided to be open as we walk through this journey ‘We want Evie to always feel pride in who she is, and all that God gave her!’When the couple was first alerted to the diagnosis that the baby had oligodactyly she described feeling a mix of feelings ‘There were lots of emotions,’ she told People, ‘but I was also relieved because there could have been a whole lot more wrong ‘   In addition to Evie, Maddie and Caleb are also parents to son Axel. Maddie’s mother Janelle is one of four sister wives married to her father Kody and featured in their hit TLC reality series